I flip-flopped back and forth on whether or not I would even write this post.
1. How do you write nothing for months, and then just reappear? And with drama.
2. I hate sympathy posts. And complainers. And other people's health problems.
For several years, I have suffered from some seemingly random symptoms. Chest pain with no known heart abnormalities. Severe abdominal pain. Bouts of insomnia. Numb hands and feet. Fatigue. Achy joints. The list goes on. I have seen many doctors. Each one eventually determining I was depressed or anxious. Not one offering any solution other than anti-depressants.
When a blood vessel in my eye burst a few months ago, my opthamalogist became concerned. She pieced together some of my other symptoms and suggested I see a Rheumatologist. I made my appointment, and then braced myself for a diagnosis of Rheumatoid Arthritis.
I was completely thrown off when my doctor told me that I did not, in fact, have RA. Instead, I have a rare genetic condition that is also an inflammatory auto-immune disorder. Except, I get the added fun of organ failure. Predominantly kidney failure, followed by liver failure. Yay.
There is no cure, and it is progressive. The really good news is there is a known treatment that will significantly reduce my chances of kidney and liver failure. The downside is I will have to take this for the rest of my life. And there are some serious side effects. The biggest is it speeds up your digestive system (read: diarrhea. ew.) AND blocks absorption of some vitamins and minerals. Almost all patients have severe weight loss. I am a size four. I doubt I need any severe weight loss. Especially given the worst part.
I will have to give up dairy while taking this medication. No Starbucks white chocolate mochas. No cupcakes with milk every evening. This, my friends, is the part that makes me tear up. You want me to give up cupcakes? Forever? And while I can eat as much as I want and still be skinny?
The results of my liver function test should be in by Tuesday, which means I should start on a low dose of my medication by Wednesday. I have to be dairy free three days prior to my first dose. That gives me through Sunday.
Don't worry friends, I started two-a-days in preparation. White mochas in the morning. Peppermint lattes in the afternoon.